A recent article written by Dr. Katy Hester states that suitable patient information could lead to a level of self-management that results in clinically and biologically important endpoints in bronchiectasis.3 In order to develop patient friendly resources, the underlying needs and issues surrounding information for patients with bronchiectasis must first be fully identified. Educational resources should be available in various settings and formats.
Patients should be able to interact with these various resources and access the information as they need it, when they need it, and avoid what they may not need or want to know. Using healthcare experts across the multidisciplinary team, patients and care givers to co-produce high quality information and education resources is an important step towards facilitating self-management advancements, improvements in adherence and consequent physical and psychological health improvements in bronchiectasis.4 Patient education and cooperation with health-care providers to implement treatment plans are key to successful management of bronchiectasis.
According to a recent NTM survey of almost 700 patients5:
- Patients believe ACT is an important component in helping them to feel better
- Yet, only 31% of physicians recommended ACT within first month of diagnosis
- All patients engage in some form of ACT when recommended by their physicians
- Yet, 50% of patients don’t perform ACT when traveling
- Overall, 27% of patients are dissatisfied with their current ACT routine
- Noise and lack of portability are some listed reasons for non-compliance where 36% of patients say ACT disrupts daily life
Educating bronchiectasis patients on the benefits of airway clearance therapy and various treatment options available can help drive greater treatment compliance for improved health benefits.